Paige

**P A I G E ' s W A L L  **   media type="youtube" key="hYtggBMD9wQ" height="310" width="504"

My Heritage

=﻿﻿ ﻿My Weemee = = **Homework Week 4** =
 * ====** MY TITLE: **==== || ==== One Special Kiwi ==== ||
 * ====** LOCATION: **==== || ==== Macleans, Bucklands Beach, Auckland ==== ||
 * ====** CLASSIFICATION: **==== || ==== Internet [] ==== ||
 * ====** WHAT: **==== || ==== Kassidy is a girl with an extremely rare disease – infact she is the only person in New Zealand who has it - but this doesn’t get this five year old down. The condition she has is called ‘Acrodysostosis’ which means she has abnormal bone development and learning difficulties. The disease doesn’t stop her living as much of a ‘normal’ life as possible – she goes to school and lives with her Mum, Dad and older sister. Unfortunately there is no cure for this disease. ==== ||
 * ====** WHEN: **==== || ==== Article reported in the Times Newspaper on 24 May 2011 ==== ||
 * ====** WHO: **====

** People Affected **
|| ====** Kassidy Gallagher: ** Five year old girl with rare disease ====

** Brian Bayly: ** Kassidy’s teacher
|| ==== This disease causes learning difficulties and affects bones making them develop abnormally; upturned nose, prominent jaw, open mouth and wide spaced eyes it can also mean you grow tiny hands, feet and are small in stature. ==== ||
 * ====** FIVE QUESTIONS: **==== || ====** What is Acrodysostosis? **====
 * ^  || ====** What school do you go to? **====

Macleans Primary School in Bucklands Beach in Auckland
||
 * ^  || ====** What do the Doctors tell you about this disease? **====

Not identified the gene that causes it – so the Doctor’s haven’t been able to give the family much help.
||
 * ^  || ====** What do you weigh at birth? **====

Kassidy’s Mum, Melissah confirms Kassidy was unusually small at birth weighing 2.1kg.
||
 * ^  || ====** Is your disease common? **====

No – its very rare.
||
 * ====** MY OPINION: **==== || ==== I think it is amazing that such a little girl can have a disease this bad and still have a smile on her face everyday. Her family are really supportive and help her live as normal life as possible. ==== ||

<span style="font-family: Kristen ITC,cursive; font-size: 27px; margin-bottom: 0in;">__Goat Island:__ <span style="font-family: Kristen ITC,cursive; font-size: 20px; margin-bottom: 0in;">__What you can do there?:__ > **__<span style="font-family: Kristen ITC,cursive;">Where to stay before? __** > **__<span style="color: #000000; font-family: Kristen ITC,cursive;">How to get there: __**
 * **<span style="font-family: Kristen ITC,cursive; text-decoration: none;">Kayaks **
 * **<span style="font-family: Kristen ITC,cursive; text-decoration: none;">Under Water Scooters **
 * **<span style="font-family: Kristen ITC,cursive; text-decoration: none;">The Glass Bottom Boat - Adults: **<span style="color: #000000; font-family: Kristen ITC,cursive; font-style: normal; text-decoration: none;"> $25 each **<span style="color: #000000; font-family: Kristen ITC,cursive; font-style: normal; text-decoration: none;">Children: **<span style="color: #000000; font-family: Kristen ITC,cursive; font-style: normal; text-decoration: none;"> $13 each **<span style="color: #000000; font-family: Kristen ITC,cursive; font-style: normal; text-decoration: none;">Family Pass: **<span style="color: #000000; font-family: Kristen ITC,cursive; font-style: normal; text-decoration: none;"> $70
 * **<span style="font-family: Kristen ITC,cursive; text-decoration: none;">Diving **
 * **<span style="font-family: Kristen ITC,cursive; text-decoration: none;">Snorkelling **
 * <span style="color: #000000; font-family: Kristen ITC,cursive; font-style: normal; text-decoration: none;">Tera del Mar ** <span style="color: #000000; font-family: Kristen ITC,cursive;">- [|www.teradelmar.co.nz]<span style="color: #000000; font-family: Kristen ITC,cursive;">- email be@teradelmar.co.nz **
 * ** <span style="color: #000000; font-family: Kristen ITC,cursive;">Island view bed in breakfast-shirleyr@internet.co.nz **
 * ** <span style="color: #000000; font-family: Kristen ITC,cursive;">Discover goat island b&b- snorkel@discovergoatisland.co.nz **
 * **<span style="background: #ffffff; font-family: Kristen ITC,cursive; font-style: normal; text-decoration: none;"> Leigh coastal B&B-jiscott@clear.net.nz **
 * <span style="background: #ffffff; color: #000000; font-family: Kristen ITC,cursive; font-style: normal; text-decoration: none;"> Leigh Sawmill Cafe & Accommodation - ** [|www.sawmillcafe.co.nz] **
 * **<span style="background: #ffffff; color: #000000; font-family: Kristen ITC,cursive; font-style: normal; text-decoration: none;">Goat Island Camping & Accommodation- [|www.goatislandcamping.co.nz] **
 * **<span style="font-family: Kristen ITC,cursive; text-decoration: none;"> Pakiri Beach Holiday Park-pakiri@khh.co.nz **
 * ** <span style="color: #000000; font-family: Kristen ITC,cursive;">Leigh Fishing Lodge- [|www.leighfishinglodge.co.nz] **
 * ** [|Leigh motel-] ** leighmotel@xtra.co.nz
 * <span style="font-family: Kristen ITC,cursive; font-size: 180%; margin-bottom: 0.2in;">No bus service is available to the town of Leigh.Drive north on State Highway 1 over Auckland Harbour Bridge to Orewa.Continue on this Highway for another 25 minutes until you reach the small township of Warkworth .This journey will take approximately 50 minutes.
 * <span style="font-family: Kristen ITC,cursive; font-size: 180%; margin-bottom: 0.2in;">At Warkworth, turn right at the second set of traffic lights on State Highway 1.Follow the road signs to Goat Island Marine Reserve (the first marine reserve to be established in New Zealand)This 20 minute drive will take you through the beautiful Matakana vineyards and Whangateau districts on to Leigh.